We have put together some useful information for children and young people with Vision Impairment.
National Support Organisations
LOOK |
Mentoring, transformational events, youth forums, parent support groups |
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VICTA |
Supports children and young adults from 0 to 29. Grants, support, advice, activities |
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Guide Dogs |
Family events, family support, CustomEyes Books, Guide Dogs for children, Buddy dogs for children, Education support |
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RNIB Children and Young People |
Advice, information, family events, workshops, digital books, RNIB connect online community |
https://www.rnib.org.uk/advice/children-young-people-education |
RSBC (Royal Society for Blind Children) |
Families First support service, advice service, Live Life Go Further activities, Health and Wellbeing clubs.
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Thomas Pocklington Trust |
Support for college and university students, events, networks, employment advice, coaching, technology advice. |
https://www.pocklington-trust.org.uk/
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SeeAbility |
Information about eye care for people with learning disabilities and autism |
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Sight Advice FAQ |
Answers to frequently asked questions about living with sight loss for parents and families |
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Sense |
For children who have hearing and vision impairments (deafblind). Information, advice, support, transition to adulthood, holidays, arts, sports and wellbeing programs. |
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Blind in Business |
Career advice for year 9 onwards, technology advice, support with CVs, support at University. |
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Infoshare |
Recorded messages from people with sight loss with hints, tips and news about living with a vision impairment |
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Sightline Directory |
Searchable database of services for blind and partially sighted people |
Local Support
Partially Sighted Society Havering |
Supporting and representing the visually impaired community in Havering |
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Sight Action Havering |
Support, advice, input into local and national strategies
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London Vision |
Supporting blind and partially sighted people who live, work and study in London |
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Queens Hospital Ophthalmology Department |
Diagnosis and treatment of eye conditions
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https://www.bhrhospitals.nhs.uk/ophthalmology
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Moorfields Hospital
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diagnosis and treatment of eye conditions, information about eye health and eye conditions |
https://www.moorfields.nhs.uk/service/children-s-services-paediatrics |
Great Ormond Street Hospital Ophthalmology Department
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Diagnosis and treatment of eye conditions, information about eye and related conditions.
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Technology Support
Microsoft
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Guide for people who are blind or have low vision. How to set up and use accessibility options
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Vital tech
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Advice and resources about assistive technology for blind and partially sighted people |
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My Computer My Way |
Support to set up a computer for someone with a vision impairment |
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Vision Impairment and computing |
Information about how technology can support people with a vision impairment
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https://abilitynet.org.uk/factsheets/vision-impairment-and-computing |
TAVIP |
Technology Association of Visually Impaired People . Advice and information about technology solutions for people with a vision impairment. |
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Apple Accessibility: vision |
How to use the accessibility features on iPads and iPhones |
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AppleVIs |
Tips and advice from a community of vision impaired Apple product users |
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Google Accessibility |
How to set up the accessibility features when using google products |
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Dolphin |
Support and information for Dolphin technology
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Humanware |
Support and information for Humanware technology |
Sport and Leisure
British Blind Sport |
Helping blind and partially sighted people to get active and play sport. Support for individuals and schools, activities. |
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Metro Blind Sport |
London Based charity creating fun, accessible sport and physical activity opportunities for blind and partially sighted individuals of all ages and abilities |
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CEA Cinema Card |
Allows a person with a vision impairment to get a complementary cinema ticket for someone to accompany them |
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Goalball UK |
National organisation promoting this competitive team sport played without using vision. |
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The Amber Trust
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Providing musical opportunities for blind and partially sighted children |
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British Wireless for the Blind Fund |
Free digital radio for anyone registered as blind or partially sighted, aged 8+ and in receipt of a means tested benefit |
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Custom Eyes Books |
Large print children’s books |
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Calibre Audio |
Free Audio books for anyone who is unable to read print |
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ClearVision |
Postal lending library of children’s books in print braille or tactile formats |
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Living Paintings |
Free Postal library of Touch to See books |
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RNIB Bookshare |
Free downloadable digital books |
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Seeing Ear |
Online library for anyone who cannot read print books |
Havering Talking Newspaper
Local news stories in audio format.
Download the Talking Newspaper app from the Google play or App store and select London / Havering Talking Newspaper.
https://play.google.com/store/apps/details?id=uk.org.blind.TalkingNews&hl=en_IN
https://apps.apple.com/gb/app/talking-newspaper/id1441802700
Finance and Grants
VICTA Grants
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Grants to support the purchase of equipment to help children who have a vision impairment |
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Guide Dogs Grants
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Grants to support the purchase of assistive technology
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TV Licence Concessions |
If your child is registered as severely sight impaired (blind) then you can apply for 50% reduction in your TV licence
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RNIB Personal Independence Payment Toolkit |
Support to apply for Personal Independence Payments (aged 16 or older) |
https://www.rnib.org.uk/personal-independence-payment-toolkit |
Fightback4Justice |
Advice on Disability Living Allowance (DLA) and Personal Independence Payment (PIP) claims |
Conditions
Albinism Fellowship |
Information advice and support for people with Albinism and their families |
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Alstrom Syndrome UK |
Family support and resources |
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Aniridia Network |
Supports people with anirida in the UK and Ireland |
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Bardet-Biedl Syndrome UK |
Helping those with BBS and their families |
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Charge Family Support Group |
Support network of individuals, parents, families and professionals |
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Childhood Eye Cancer Trust |
Support and financial help for families of children with retinoblastoma |
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Childhood Cataracts |
Information, email group, events |
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Charles Bonnet Syndrome |
Support and information |
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The CVI Society |
Support families of children with Cerebral Visual Impairment. Advice and support, training, raising awareness of CVI. |
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Familial Exudative Vitreoretinopathy |
Support Group |
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Glaucoma UK |
Providing help to everyone affected by glaucoma |
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Lebers Congenital Amaurosis Support Group |
Support group for families affected by LCA |
https://www.facebook.com/LebersCongenitalAmaurosisSupportGroup |
Emotional support, financial assistance , national and regional social events, activity holidays |
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Private Facebook group for families affected by retinopathy of prematurity |
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Support, inform, connect and advocate for children with Usher syndrome and their families |
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Information, support and advice for anyone affected by uveitis |
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